My brother, Bill, with my parents after the race.
My brother, Bill, was diagnosed with Parkinson’s Disease several years ago. In late November 2012, he underwent brain surgery to implant deep brain stimulators in the hope that these would help control his symptoms. If you haven’t already, you can read/see more about Bill’s amazing story in this blog post, My Brother, My Hero, My Friend. Two months after the surgery, the doctor gave Bill permission to resume exercising. Just seven weeks later, Bill competed in a 5K race in Jefferson City, MO. He covered the hilly terrain in 29:44.
Bill enjoys running and says it is actually easier to run than it is to walk. He sets concrete, achievable goals. He says he likes to focus on running because “Parkinson’s is too big.” His next running adventure is in 3 weeks: he’ll be on a marathon relay-team in St. Louis.
He is feeling much better since the deep brain stimulation (DBS) surgery. He is back at work full-time. He says he feels hopeful and he sees that he has his whole life ahead of him. I’ve been doing a lot of video interviews with him, and will post more as I can. For any friends and relatives reading this, Bill has said numerous times that he couldn’t have done this without all of your love and support!
Check out Bill’s running story in this short video:
A big shout out to my son for helping me (A LOT) with this video.
Here’s a picture of my husband, Greg, who also ran, the race, with Bill.
Greg and Bill
March 16, 2013
I am so excited. I have been waiting to share these videos until I got the okay from my brother. Bill has early-onset Parkinson’s Disease. He’s managed pretty well with medication over the years, even running several half-marathons and completing triathlons. But the medications were wearing off sooner and sooner, so he and his doctor decided the time was right for brain surgery (Deep Brain Stimulation). He had the surgery at Barnes Hospital, a part of Washington University Medical Center, about 8 weeks ago. I don’t want to write out the whole story now (some time I will). Let me just say that my brother is an amazing person! We’ve always been close, and I’m honored that he’s having me document his journey on film. Our end plan is to submit a 5-minute piece to the American Academy of Neurology Film Festival to help raise awareness of brain disorders. These are kind of practice pieces, although I’m sure many of the clips will end up in the final version. And I’ll definitely have a longer version for our family. I did the filming and editing with a little help from my son (who also drove me to St. Louis for Bill’s DBS programming session). I couldn’t have done all the driving myself. Bill is back to work full-time and training for a 5K on St. Patrick’s Day weekend, and he plans to run a half-marathon close to his 50th Birthday in August.
What’s With the Cane?
A Big Step
Here are a few pictures.